Happy Saturday! We've had a wonderful week here at the Fong homestead. Seth has been adjusting to his new eating schedule, or shall we say I have?! We are adjusting to rice milk, proteins, fresh fruits and veggies and Seth is responding well with limited eczema outbreaks and minimal hive reactions. We are still trying to come to terms with why the hives come and go and where they stem from, but will do our best to avoid all foods associated with his sensitivities as well as spread out some of his medications.
A praise report is that Seth's doctors have decided to cut his main immunosuppressant by 1/4 each day! This is the drug he will remain on indefinitely... we are so pleased with his progress and thankful too! He amazes us with his tenacity and eager spirit to learn and walk and play.
Please be in prayer for a potential ear infection as Seth is running a low grade fever as of this afternoon. We are hoping for the best by assuming it's an earache/infection and will call his on-call liver doctor if any further changes appear. Other than that, he's his happy little self! You can imagine the fears we face when any glimmer of sickness appears, but we will hold out for the best case scenario and wait on God for peace.
We had a wonderful day at the ocean today. Seth experienced the beach for the first time and absolutely loved it. We were excited to see a pod of dolphins swim near the bodyboarders and a helicopter that flew in to try to shoe them away. The boys thought that was fantastic! Rocks and sand and beach and dolphins, yes, it was a nice day today, that's for sure...
We have had our longest stretch to date not visiting UCLA and are scheduled for the 3rd week this month, May 27th. Looking forward to hearing Seth's progress from their point of view and getting a wonderful report. Thank you for visiting us this week! We appreciate your prayers and love...
Sam
Tjis photo brings tears to my eyes.
ReplyDeleteThis has been a year of tremendous trials for you and your family, yet through these photos you just have a sense of Gods love and provision.
Will continue to pray for God to use Seth as a sign of miracles for those who He is drawing to him.
Prayers for the diet and praise that he has been responding well and the decrease of meds.
Your faith is being testing and increased and the Lord is doing much in your other boys as well. He is laying a strong foundation in their faith. It is hard to praise Him in the storms but easier when we see the sun shining through the clouds.
Will contact you soon. Very busy in a new office. I continue to pray and the Lord is laying your family heavy on my heart.